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What is the average delay in diagnosis of a rare disease ?

The average time spent waiting for a diagnosis for a rare disease can be significantly longer than for common diseases, because rare diseases are often difficult to diagnose due to their rarity and the variability of their symptoms. According to a study by Eurordis, a European rare disease organisation, the average diagnosis time for a rare disease is five years. However, it is important to note that the time taken to diagnose a rare disease can vary considerably from patient to patient, depending on the complexity of the disease, the availability of diagnostic tests, management and access to healthcare. These are all factors that can be influenced.